In addition to the child caretaker exemption allowing an elderly individual to transfer their home to their adult child without violating the look back period, it also protects the home from Medicaids estate recovery program. Be clear about ways they might be able to help. It is okay to allow for different styles, as long as no ones well-being is at risk. The app constituted caregiver, child information and seven service elements: physical growth, developmental milestones, immunizations, nutrition, teething, safety & emergency measures and report. Hospice care is provided through a team-based approach with doctors, nurses, social workers, and other dedicated health professionals. In most cases, hospice care is used when the doctor believes the patient has between six months to a year to live. For questions or assistance, call ICAN at 844-614-8800 or visit: www.icannys.org. Enjoy a warm and inviting space where you and your child can play and socialize with others in the community. Create a file of important information about the individual you are caring for. The education needed to be a child caregiver is normally a bachelor's degree. . The Center Caregiver. Adult Day Health Care: A program that offers medically supervised services for individuals with physical or mental impairment. 115-123) signaled the importance of strengthening these family connections by providing funding for Prepare for common emergencies. 32 NYS CAREGIVER GUIDE CONSUMER DIRECTED PERSONAL ASSISTANCE PROGRAM (CDPAP) New York States CDPAP allows people with Medicaid choice in who they hire to provide servicesincluding hiring family or friends. NY Connects: A statewide resource that provides information and assistance; screening for available long term services and supports for all individuals, regardless of age, diagnosis, disability, or payment source; options for counseling/person centered counseling; application assistance for public benefits; and facilitated connection to community services. They can also provide you with common questions to ask when meeting with the health care team. Caregiver Advise, Record and Enable (CARE) Act: The CARE Act requires that general hospital inpatients be given an opportunity to formally identify a caregiver (i.e., a relative, partner, spouse, friend, or neighbor) who would provide post-discharge assistance. Keep an information folder in a safe and known place. Caregivers have the responsibility of caring for your child in a manner that meets your approval as well as meets the developmental needs of your child. What Proof is Required by Medicaid for the Child Caregiver Exemption? Personal care aides are limited in the medical care they can provide. If your family tackles issues as a team, youre probably ahead of the game. Try to plan a family meeting. TRAINING RESOURCES At the end of this guide, you will find a list of agencies that can help. Relative Caregiver - California (AB 938, 2009) and Federal law (PL 110-351) requires that when a child is removed from the home, known relatives must be located, contacted and told about the child's removal within the first 30 days of the removal. (ADA) and other nondiscrimination laws and authorities, ADES does not discriminate on the basis of race, color, national origin, sex, age, or disability. Care Plan: A written plan for ones care that describes the services an individual will receive in order to be as physically, mentally, and socially healthy as possible. NEW YORK STATE PAID SICK LEAVE Beginning January 1, 2021, all employers in New York State are required to provide annual sick leave to their employees. Some caregivers may take a leave of absence, reduce their work hours, or leave their jobs altogether in order to take care of someone. If you as the caregiver have problems getting the medical information you need, talk with the medical provider or facilitys social worker, patient representative, or privacy officer. A statement from the parents physician is generally required. The goals of home care may be to help someone after an illness or injury, provide services after a hospital stay, or provide long-term support to keep the person as healthy and independent as possible. Think about enlisting a care agency before an emergency arises, even if you only use it once in a while. As of January 2021, this laws benefits include a maximum of 12 weeks of paid leave in a 52-week period and wages of up to 67% of the employees average weekly wage. However, there are a few exceptions. 97 RESOURCES Medigap, private health insurance, lowincome subsidy programs, and other health insurance information. Medicare: The federal medical insurance program for individuals age 65 and older and those with certain disabilities: Medicare Part A covers hospital care Medicare Part B covers physicians and medical care Medicare Part C refers to a Medicare Advantage Plan Medicare Part D covers prescription drugs Medigap: Additional health insurance purchased from a private company to help pay for services and supports not covered by the persons original Medicare plan. A caregiver is someone who may do any of the followingand more: Speak up for another person to ensure their rights and wishes are supported. This type of care helps control symptoms and may include pain relief, counseling, and treatment for sleep problems. Reading and understanding medication labels can help you. HIPAA allows people directly involved in care or payment for such care to get this information. Current Through: September 2022. Understanding the Child Caregiver Exemption. Caregivers who provide more hours of care report a higher amount of stress and loneliness. Manage bills or provide other forms of financial support. Sometimes friends and family may not know what you need. Retirement benefits may include individual retirement accounts (IRAs) or annuities. As many of us are aware, the federal guidelines allow Medicaid applicants to transfer their home to a child caregiver without suffering a Medicaid penalty for the transfer. It cannot be used for health care decisions. The Checklist is available online and includes tips to help you rid the home of things that might jeopardize a vulnerable persons safety or health. For example, pay attention to how the person speaks and interacts with the person you support. Social adult day services programs provide care for adults in a supervised group setting within the community. APS workers develop service plans for eligible clients to address abuse, neglect, financial exploitation, or unmet essential needs of adults. This may also be needed in the event that you are unable to provide care, such as a medical emergency, surgery, or when you are traveling. If your child with autism is under the age of 21, you can designate a grandparent or another relative as a CDPAP caregiver or hire a personal assistant. There must be one caregiver for every 2 children under the age of 2. Children must be supervised by their grown-up at all . This is provided while the medical team also treats the illness. His 13-year-old brother, Scott, feels the same way, explaining that it's "just something you do, you take care of each other.". Preparing for these situations ensures that the person you support still receives the care they need. In most cases, the leave must be paid. To buy a Medigap policy, one must be enrolled in Medicare Part A and Part B. Care Team: A group of trusted individuals who can help make decisions about a loved ones care. Talk about a backup plan with family or friends who are willing to provide care or other assistance during an emergency. 18, CAREGIVER EDUCATION UNDER THE CARE ACT HOSPITALS MUST: Provide each patient or their legal guardian with at least one chance to identify at least one caregiver prior to the patients discharge or transfer. Fair market value is the amount the home would sell for on the open market. Parents of children younger than 21 are not allowed to act as CDPAP caregivers. Being a caregiver is not always easy, but it can be rewarding. Advance Directives The best way to make sure that a persons health care wishes are known and honored is to use one or more of the following legal documents, sometimes referred to as Advance Directives. In New York State, there are three types of Advance Directives: Health Care Proxy: A Health Care Proxy lets a person name a health care agent they trust to make health care decisions on their behalf. Without the proper knowledge, one may unknowingly make a disqualifying transfer, jeopardizing their long-term care Medicaid eligibility. Be ready to tell the doctor exactly what you need at each appointment (information, referrals to care, refills or new drug prescriptions, etc.). The law covers employees under New York States temporary disability law and those who have been employed for at least 26 weeks. They can also prepare meals, grocery shop, and do light housework. Calendars and Schedules Think about keeping a shared calendar with family and friends helping with care. This site is for information purposes; it is not a substitute for professional legal advice. Readers are encouraged to confirm the information contained herein with other reliable sources and to direct any questions concerning their personal health to licensed physicians or other appropriate health care professionals. NYS CAREGIVER GUIDE TELEHEALTH Many providers offer services through telehealth. Homemakers cannot provide personal care. A registered family child care provider may care for: 6 young children not yet school age PLUS 2 school age children. Impact of Caregiving 02 CAREGIVER EDUCATION Pg. Our program room is a multi-purpose space. Ask about what the treatment options are, including the pros and cons of each. Provide support with legal planning. Community Services Some caregiver support services, including respite, support groups, and care consultations, are offered through community organizations and may be available locally at low or no cost. Clearly defining needs and responsibilities can help. For more information, visit: www.medicare.gov/supplements -other-insurance/whats-medicare-supplement-insurance-medigap. Get seven to eight hours of sleep. 65 Social Security Disability Insurance (SSDI) This government program provides a minimum monthly income to those younger than 65 who have a disability and have accumulated enough work credits throughout their working life. The Civilian Health and Medical Program of the Department of Veterans Affairs (CHAMPVA): A health benefits program in which the Department of Veterans Affairs shares the cost of certain health care services and supplies with eligible beneficiaries. More information is available online at: www.health.ny.gov /professionals/patients/patient_rights/molst . Health Care Proxy: A form that designates an individual to make health care decisions on a persons behalf in situations where the person is unable to communicate the information. Conversely, under the caregiver child exemption, a caregiver is an adult child who lived in the parental home and cared for them for at least two years before the parent moved to a nursing home or assisted living facility. Child caregivers take responsibility for preparing and organizing the snacks and mealtimes for children. Technology-Related Assistance for Individuals with Disabilities (TRAID): A program that loans assistive technologies to New Yorkers of all ages and disabilities. 57 SAFETY CONCERNS Home Modifications and Assistive Technology In some cases, devices designed to help with medications, bathing, or other care tasks may help provide care for someone in the home. If one is trying to establish Medicaid eligibility prior to transferring the home and the parents home equity interest is over the states limit, this could become an issue. The Family First Prevention Services Act (P.L. In other situations, you may find that the person offering help may do better with more training or education related to caregiving. For example, you might divide caregiving tasks so that one person takes care of medical responsibilities, another helps with money and bills, and another helps with groceries and errands. Health-related long term care needed regularly due to a mental or physical condition. Other As you plan for your financial future, you might want to think about working with an independent, professional financial planner who will understand your individual situation. In order to get a Family Child Care Home license, you must: Be 18 years of age or older Attend an orientation (if you have not completed a Family Child Care Home Orientation within the last 12 months) Home Disability services Get paid as a caregiver Get paid as a caregiver for a family member Some government programs pay family or friends of people with disabilities to help with daily activities including personal care, giving medicine, cooking, cleaning, and more. 61 Several documents help honor a persons wishes for care and personal finances should they no longer be able to make decisions. The program assists New Yorkers with enrolling in and using managed care plans that cover long-term care services, such as home attendant services or nursing home care. Are the Child Caregiver Exemption Rules the Same in All States? or professional nursing services. If you have questions regarding background check requirements, please contact the Child Care Background Unit by calling 608-422-7400 or emailing . Transportation Grocery shopping Housework Managing finances /paying bills Preparing meals, including food for special diets Medication management Managing medical services Getting in and out of bed and chairs Dressing Answering the phone or door Maintaining equipment (wheelchair etc.) Products such as pill containers that divide medications by date and time, as well as automatic dispensers, can help keep medications organized and help you remember when they need to be taken. 77 PLANNING FOR THE UNEXPECTED Keep a written journal of current care needs. Consumer Directed Personal Assistance Program (CDPAP): A statewide Medicaid program that provides an alternative way of receiving home care services; the individual or a person acting on the individuals behalf assumes full responsibility for hiring, training, supervising, and terminating the employment of persons providing the services. To contact a HIICAP counselor near you, please call 800-701-0501 or visit: www.aging.ny.gov/health-insurance-information-counseling -and-assistance-program-hiicap. 11, NYS CAREGIVER GUIDE Impact of Caregiving As a caregiver, you are not alone. If you have concerns that the person providing care or the person in need of care is being mistreated or neglected, contact your local Adult Protective Services (APS). The same is true in caregivingyour needs should come first. People sometimes take several medications and your role may involve watching for side effects with multiple medications. State Medicaid programs Spend time with friends. If possible, involve the person you care for in choosing options for the future. Show home care staff your list of emergency contacts. Conditions that often require the help of a caregiver include: physical decline; chronic conditions such as arthritis, diabetes or dementia; visual and hearing impairments; sudden medical events such as a heart attack, stroke, or a traumatic brain injury; developmental disabilities; mental health or psychiatric disorders; and addiction. Make notes describing the key changes in your health or the care recipients medical condition so your doctor has a clear picture of your needs during the visit. Caregiving can affect personal finances when using paid help, offering monetary support, or due to a change in personal or work life. Allow everyone to share their concerns and express their feelings. The amount of leave, and whether it is paid or unpaid, depends on the size of the employer. 15 Know your Rights NYS Caregiver Advise Record and Enable (CARE) Act Family and Medical Leave Act (FMLA) New York State Paid Family Leave Act New York State Paid Sick Leave 03 CREATING YOUR CARE TEAM Pg. Second homes and vacation homes cannot be transferred via this exemption. Organ Donor Authorization. HOME SAFETY CHECKLIST www.health.ny.gov/publications/3106.pdf PREVENTING FALLS CHECKLIST www.health.ny.gov/publications/0640 56. The Child Caregiver Exemption allows for the transfer of a parent's primary residence to the "caregiver" child without a transfer penalty. Attempt to notify the caregiver about the patients transfer to another healthcare facility or before the patient returns to their residence. Use of this content by websites or commercial organizations without written permission is prohibited. 78 NYS CAREGIVER GUIDE Get and Stay Organized Many caregivers find that being organized helps lower their stress in the event of an emergency or a sudden change to the current care needs. The right to be involved in decision-making, including hospital discharge planning and medical treatments. Supplemental Security Income (SSI) This government assistance program provides a minimum monthly income for people who are 65 or older, who have a disability, and have limited income and assets. DID YOU KNOW? Taking on this role often affects ones mental and physical health, social life, and interpersonal relationships. Attend a community event. While all states, with the exception of California, have a home equity interest limit for long-term care Medicaid eligibility (nursing home Medicaid or home and community based services via a Medicaid waiver), there is no home equity limit when a home is transferred to an adult child via the child caretaker exception. 70 Medicare Medicare is the federal medical insurance program for people age 65 and over; certain younger persons with disabilities; and people with certain disabilities or diseases. 75 Get and Stay Organized 09 SEEKING SUPPORT Pg. Copyright 2023 All rights reserved. State-specific home equity interest limits can be found here. Review the employers handbook and check with the employer to understand what is available to you or the person in need of care. They can give or sell the home for less than fair market value without jeopardizing their long-term care Medicaid eligibility. To qualify for the child caretaker exemption, the adult child must move into their parents home and live with their aging parent for a minimum of 2 years immediately prior to the parents admittance to a nursing home. 48, COMMUNICATING WITH HEALTHCARE PROFESSIONALS TIPS TO EFFECTIVELY COMMUNICATE WITH YOUR CARE TEAM: Pick a doctor or team of health providers with whom you can comfortably communicate. For more information about telehealth, ask the healthcare provider or insurance company about your options. Some caregivers find little to no impact on their personal health and well-being, and find meaning in their role as a caregiver. Group health insurance coverage is available as if the employee had not taken leave. This is not an uncommon theme in children when they live with someone who has a physical . Among child caregivers, 89.9% of them are women, while 10.1% are men. Regardless of whether an adult child is considering utilizing this planning strategy, currently providing care for an aging parent, or has already provided care, a Medicaid planner can provide assistance in understanding ones state rules and ensuring appropriate documentation is provided. When an assistant caregiver is employed to meet the required staff to child ratio, the assistant caregiver is a responsible, mature, and healthy individual at least 16 years of age. Palliative Care: Special care for people who have serious illnesses. For example, New Jersey previously would not allow the child caretaker exception if the caregiver child worked outside of the home. Some home health aides can assist with. Living Will: A Living Will allows a person to leave written instructions that explain their health care wishes, especially about end-of-life care. Allow yourself space and the right to get angry, sad, and cry. Medical Orders for Life Sustaining Treatment (MOLST): The MOLST tool is used to help physicians and other health care providers discuss and honor a persons preferences for treatments such as cardiopulmonary resuscitation (CPR) or artificial nutrition. Prepare ahead of time for each doctor visit. For more information, contact your employers human resources department. Below is a list of favorable attributes that a caregiver should possess followed by a list of requirements prescribed by the State Department of Human Resources. Now, let's review basic care requirements for infants.Review the content and when you are done, click next to continue. Know Your Rights NYS CAREGIVER ADVISE, RECORD AND ENABLE (CARE) ACT The CARE Act requires that during a hospital stay, patients have the right to designate a caregiver who will help them after they are discharged. The law protects patients from being discharged without having needed services in place: www.health.ny.gov /professionals/patients/patient_rights . Year Published: 2023. These Plans are approved by the New York State Department of Health to provide Medicaid managed long term care. Some adult day care programs provide health services as well. Home care can be paid privately or through Medicare, Medicaid and other insurance programs. Children as Caregivers. If the person youre providing care for needs help with money matters like banking or paying bills, you may need to ask them to consider naming someone to act on their behalf through a durable power of attorney. By providing care to an aging parent while residing in the parent's home, an adult child can use the Child Caregiver Exemption to transfer ownership and protect the home from the Medicaid Estate Recovery Program. It is recommended the counsel of a professional Medicaid planner be sought prior to transferring ones home to an adult caregiver child. Insurance There are several typeslong-term care insurance, private health care or disability insurance, and life insurancewhich may help provide a source of funds for care. The child caregiver exception / child caretaker exemption allows seniors to transfer their primary home to their adult child who has been providing them with care. They can grocery shop, do laundry, and prepare meals. Documents in the caregiver childs name with their associated address the same as their parents primary home. The child caregiver exception / child caretaker exemption allows seniors to transfer their primary home to their adult child who has been providing them with care. Certified Financial Planner: A person who has passed examinations accredited by the Certified Financial Planner Board of Standards, showing, 95 RESOURCES that they are able to manage a clients banking, estate, insurance, investment, and tax affairs. The overall goal of these services is to keep the person as healthy and independent as possible. For certain businesses outlined in Title IV of the Revised Code of the Consolidated City and County, the Department of Business and Neighborhood Services does provide licensure services. 41, NYS CAREGIVER GUIDE Palliative Care and Hospice Care: Whats the Difference? Caregivers may purchase annual certification training for $59 or $79. Failure to meet all of the conditions or submit all required documents can result in denial of the home transfer, or if the home has already been transferred, cause a penalty period of Medicaid ineligibility. To qualify for this exemption, the Medicaid. New York is also an exception, as the state will be implementing a 30-month look back rule no earlier than March 31, 2024 for Medicaid long-term home and community based services. The right to ask for help and set limits. Create an account in the Permanent Residence portal to get ready. etc. Home Alone AllianceSM These How-To videos provide instruction to family caregivers on specific medical/nursing tasks. 54, NYS CAREGIVER GUIDE Creating a Safe Environment The New York State Department of Health developed a downloadable Home Safety Checklist you can use to check for safety and health hazards in the home where youre going to be providing care. 38 NYS CAREGIVER GUIDE ADULT CARE FACILITIES Adult care facilities are licensed and may be referred to as adult homes, enriched housing programs, assisted living residences, or assisted living programs. Please mail proof, along with completed questionnaire or jury summons to: Queens Division of Jurors. Medicaid will only pay for home and community based services in these settings; Medicaid will not cover the cost of room and board. In addition to you and the person in need, the care team can include family, friends, doctors, social workers, and others whom you trust. However, for the purposes of this article, we will discuss the child caregiver exception in the context of Medicaid-funded nursing home care since it is most common. This exemption can also help a Medicaid candidate meet Medicaid's asset limit for financial eligibility, which is $2,000 . Some situations require temporary care, while others require long-term services and support. Under new federal and state requirements, all caregivers and noncaregiver employees and residents age 10 or older in certified and licensed child care centers now require DCF-run background checks . Personal Assets Including investments and savings. 87 SEEKING SUPPORT Asking for Help Be willing to accept offers of help. By using our website, you agree to our terms of use and privacy policy. Although child care licensing does not guarantee quality, it does set minimum health and . Urgent Care: A walk-in clinic that provides immediate medical service outside of an emergency room. Dont be shy about letting others pitch in. Build a team of people you trust. Advance Directive: A document that outlines to health care professionals the various types of care that a person wants or does not want in case they are unable to relate the information themselves. DID YOU KNOW? Make a list of specific issues and questions that you need to discuss. 89 New York State Resources National Resources Terms You May Encounter, 9 01 CAREGIVERS (YOU) PLAY AN IMPORTANT ROLE IN OUR SOCIETY. Its important to have a file for both the person you support and yourself. However, even close families can be tested when one of you needs care. Child Caregiver Requirements: A high school diploma or GED. The caregiver must meet DCF licensing requirements to become a kinship foster parent. Telehealth options can be helpful in allowing you to access healthcare from the comfort and safety of home. You can also visit www.nyconnects.ny.gov to find caregiver training resources near you. However, in March of 2021, the courts ruled in favor of a caregiving child who hired home aides to care for his mother while he worked outside of the home. Other caregiver benefits through the program include these: Read our accessibility statement or click here to enable. Use the following checklist to help you figure out what sources of financial support may be available to you or the person needing care. Spend time together. However, the interpretation of these rules may vary slightly based on the state. The goal of hospice care is to help provide comfort and prepare the patient and their family for the end of life. 49, NYS CAREGIVER GUIDE HIPAA You might hear I cant tell you that because of HIPAA. HIPAA (Health Insurance Portability and Accountability Act) is a federal law that establishes rules for sharing and protecting personal medical information. While the rules surrounding the child caregiver exemption may sound fairly straightforward, the rules are more lenient in some states than others, documentation must be provided, and the required documentation may be state-specific. Before the meeting, prepare to talk about medical care, living arrangements, dividing caregiving tasks and how to pay for care. Also consider creating a reminder system for medications to help ensure doses arent missed. Though you may not receive the support of others on a regular basis, having a backup plan in the event of an emergency is essential. Families must also deal with a caregiver's FICA tax obligationthe Social Security tax of 6.2% on wages up to $118,500 in 2016 and the Medicare tax, which is imposed at a rate of 1.45% on all wages with no limit. More information about Managed Long Term Care Plans is available online at: www.health.ny.gov/health_care/medicaid/redesign/docs /mltc_guide_e.pdf . When employed caregivers are trying to balance a caregiving role with their career, many need to modify work schedules by going in late, leaving early, or taking time off. Be aware of the expiration date and safely get rid of any expired medication. FORMS www.health.ny.gov/professionals/patients /patient_rights. These requirements help ensure your child is healthy and safe in a child care program. Be sure to contact the provider to understand the coverage and benefits. 09 Who is a Caregiver? 71 MEDICARE AND MEDICAID Medicaid Managed Long Term Care Managed Long Term Care Plans help provide services and support to people with a long-lasting health problem or disability. 90 NYS CAREGIVER GUIDE New York State Resources Department of Health, Alzheimers Disease Program Email: alz@health.ny.gov www.health.ny.gov/diseases/conditions /dementia Department of Health, Adult Care and Assisted Living Complaint Line 866-893-6772 Department of Health, Home Safety Checklist www.health.ny.gov/publications /3106.pdf Department of Health, Hospital Patient Care Issue Line 800-804-5447 Department of Health, Medical Orders for Life-Sustaining Treatment (MOLST) www.health.ny.gov/professionals /patients/patient_rights/molst Department of Health, Medicaid Program www.health.ny.gov/health_care /medicaid Department of Health, Nursing Home Patient Care Line 888-201-4563 Department of Health, Patient Rights www.health.ny.gov/professionals/patients /patient_rights Health Insurance Information, Counseling and Assistance Program (HIICAP) 800-701-0501 Home Care and Hospice Information 800-628-5972 Hospice & Palliative Care Association of New York State www.hpcanys.org Local Offices for the Aging throughout NYS www.aging.ny.gov/local-offices Medicaid Managed Care Managed Long Term Care www.health.ny.gov/health_care /managed_care Medicare General Information Line 800-633-4227, 91 RESOURCES Medicare Rights Line 800-333-4114 Mental Health Association of New York State www.mhanys.org NY Association for Independent Living www.ilny.us New York State Bar Association www.nysba.org New York State Caregiving and Respite Coalition www.nyscrc.org New York Connects 800-342-9871 www.nyconnects.ny.gov New York State Division of Veterans Affairs 888-838-7697 www.veterans.ny.gov New York State Homecare Registry https://apps.health.ny.gov /professionals/home_care/registry/ home.action New York State Homes and Community Renewal www.nyshcr.org New York State Office for the Aging 1-844-NYSOFA1 or 1-844-697-6321 www.aging.ny.gov/programs /caring-loved-one New York State Unified Court System www.nycourts.gov/forms/surrogates /guardianship.shtml Office of Children and Family Services 518-473-7793 www.ocfs.ny.gov Office of Mental Health 800-597-8481 www.omh.ny.gov Office for People with Developmental Disabilities 866-946-9733 www.opwdd.ny.gov, 92 NYS CAREGIVER GUIDE National Resources Administration on Aging, US Department of Health & Human Services www.aoa.gov Alzheimers Association 800-272-3900 Email: info@alz.org American Association of Caregiving Youth www.aacy.org American Cancer Society 800-227-2345 www.cancer.org CHAMPVA Insurance www.va.gov/health Family Caregiver Alliance 800-445-8106 Email: info@caregiver.org www.caregiver.org Hospice Foundation of America 800-854-3402 Email: haoffice@hospicefoundation.org www.hospicefoundation.org Medicare www.medicare.gov, 93 RESOURCES National Alliance for Caregiving Email: info@caregiving.org www.caregiving.org National Alliance for the Mentally Ill 800-950-6264 www.nami.org National Council on the Aging Email: info@ncoa.org www.ncoa.org National Hospice & Palliative Care Organization 800-658-8898 www.nhpco.org National Institute on Aging 800-222-2225 www.nia.nih.gov National Mental Health Association 800-969-6642 www.nmha.org Sage National LGBT Elder Hotline 1-877-360-5428 United Hospital Fund, Next Step in Care www.nextstepincare.org United States Department of Labor, Family and Medical Leave Act www.dol.gov/whd/fmla, 94 NYS CAREGIVER GUIDE Terms You May Encounter Activities of Daily Living (ADL): Basic self-care tasks such as feeding, toileting, dressing, and grooming.
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